Hi all--
I'll cut to the chase: I start chemo next week. I feel... Okay. Alternating between fine and angry. Did some angry sewing earlier (a baby quilt--hope it doesn't pass on to the baby!). Drank some wine. Ate some chocolate. It helps a little.
The cancer is stage 1 (0-4 scale; my type starts at 1 because it is considered invasive so stage 1 is the best I could hope for), so I am starting with a great prognosis. They now do personalized testing to determine risk of recurrence and responsiveness to additional treatment. This is the testing I've been waiting on since surgery.
As Husband quipped, it's like going from a B to an A-. Which was both funny and helpful because I am definitely the person who would go for the A- over a B! Heck, let's try for the A.
Anyway, the doctor offered us time to consider, another mtg to discuss, but I said let's just do it. Get it done! I asked if he would encourage his daughter to do it and he said, I think sincerely, yes. So I had blood drawn today and next week I'll have a port put in and then next Thursday I start. Assuming my plastic surgeon clears me (but we assume so because I am 4weeks post surgery this Wednesday).
We met the social worker. She gave us books for the boys which we probably won't use; "mommy has cancer" is not a sentence I want to say out loud. Mommy needs medicine and will have a bald head, fine. But I want to laugh about how funny that is. I am not dying, I don't feel sick. And they are LITTLE! Too little. So we are going to normalize it as much as possible.
We saw the infusion room which is a big room with chairs around the perimeter. The infusions take @3-4 hours! The doctor said how I react to the first one will likely be how I react to future infusions. So that's good to know.
The cancer is stage 1 (0-4 scale; my type starts at 1 because it is considered invasive so stage 1 is the best I could hope for), so I am starting with a great prognosis. They now do personalized testing to determine risk of recurrence and responsiveness to additional treatment. This is the testing I've been waiting on since surgery.
I scored 25 on the oncotype test (read more here: http://www.breastcancer.org/symptoms/testing/types/oncotype_dx), which is right in the middle of the "intermediate" (ambiguous) range. So I have a 16% chance of cancer recurring (elsewhere) if I do tamoxifen (standard, hormonal therapy for my kind of cancer) alone, or I can add chemo and reduce the risk to maybe 10-11%. In other words, if i just do tamoxifen, there's an 84% chance I will be cancer free in 10 years. If I add chemo, 90% chance I'll be cancer free. It doesn't sound like much of a difference, but it is much easier to treat and "cure" it now than to wait and treat a cancer that may develop. Because once it is elsewhere... You know the rest. (And while it wasn't in my lymph nodes, there's no guarantee they just didn't see a cell...)
As Husband quipped, it's like going from a B to an A-. Which was both funny and helpful because I am definitely the person who would go for the A- over a B! Heck, let's try for the A.
Anyway, the doctor offered us time to consider, another mtg to discuss, but I said let's just do it. Get it done! I asked if he would encourage his daughter to do it and he said, I think sincerely, yes. So I had blood drawn today and next week I'll have a port put in and then next Thursday I start. Assuming my plastic surgeon clears me (but we assume so because I am 4weeks post surgery this Wednesday).
We met the social worker. She gave us books for the boys which we probably won't use; "mommy has cancer" is not a sentence I want to say out loud. Mommy needs medicine and will have a bald head, fine. But I want to laugh about how funny that is. I am not dying, I don't feel sick. And they are LITTLE! Too little. So we are going to normalize it as much as possible.
We saw the infusion room which is a big room with chairs around the perimeter. The infusions take @3-4 hours! The doctor said how I react to the first one will likely be how I react to future infusions. So that's good to know.
I will have 4 infusions -- the least they do. There is roughly three weeks in between each one so it'll be about 12 weeks until I'm done.
I don't know when I'll lose my hair. A few weeks in, I assume. I get a prescription for a good wig. Bald for my 40th!
After chemo I will start the tamoxifen and take it until my ovaries and tubes come out. (Most women take it 5-10 years but I won't need it if I have no ovaries producing hormones.)
Thanks for all of your calls, visits, letters, emails, food, carpooling, babysitting, etc. I am so grateful. Thanks, as well, for treating me like a normal person. I won't make it through this if we can't laugh, if we can't have fun. My family won't make it through if we don't laugh and have fun! I don't want to cry over my lost hair (although I probably will). I do want to yell about it, and then I want to laugh about it. So you better be ready to crack some jokes and try on some wigs with me!
I don't know when I'll lose my hair. A few weeks in, I assume. I get a prescription for a good wig. Bald for my 40th!
After chemo I will start the tamoxifen and take it until my ovaries and tubes come out. (Most women take it 5-10 years but I won't need it if I have no ovaries producing hormones.)
Thanks for all of your calls, visits, letters, emails, food, carpooling, babysitting, etc. I am so grateful. Thanks, as well, for treating me like a normal person. I won't make it through this if we can't laugh, if we can't have fun. My family won't make it through if we don't laugh and have fun! I don't want to cry over my lost hair (although I probably will). I do want to yell about it, and then I want to laugh about it. So you better be ready to crack some jokes and try on some wigs with me!
Love, c
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